Casey Fero ME-CFS Blood Tissue Bank
On
Casey
was diagnosed with CFS at age 9 and again at age 15. It caused him to feel weak, unable to think,
and exhausted. He was plagued with
headaches, stomach problems, and had major sleep disorder among a list of daily
symptoms. Casey persevered and did not
want people to know his condition. Early
on, he knew that medical help was unavailable and furthermore, he was met with
disbelief in the school and in the doctor’s office.
As
a lasting tribute to Casey, the Fero family, the Wisconsin Chronic Fatigue
Syndrome Association, Inc., and Mothers against Myalgic Encephalomyelitis, Inc.
(MAME) will create the first universal access blood and tissue bank for ME-CFS
patients.
Sound
medical research is the key to understanding the cause of these disorders and
to developing treatments that can help patients manage daily living. Many recognized illnesses, such as
Alzheimer’s, were poorly understood before the creation of tissue and blood banks. Precious gifts of tissue and blood benefit
all individuals and families living with illness.
A universal access specimen bank means
that any scientist can ask for samples provided that their study meets careful
guidelines. The Institute for Viral
Pathogenesis, a Medical Diagnostic Laboratory in
Right now, we are fund raising to buy
an additional freezer for storage at the facility. The cost is about $10,000. Will you help us? Your contribution is tax deductible through
the Wisconsin CFS Association, Federal ID number 39 -1614649. You can send a check to the association at
the address listed below. Please specify
CASEY’S FUND.
Sun
You can also donate online at <www.wicfs-me.org> Contributions are dedicated to Casey and will not be used for any other
purpose.